What’s Meaningful Participation?

Meaningful Participation by Alice WelbournWhat’s Meaningful Participation? A key question that requires many people to answer.

A diverse and dynamic group of activists, academics and public health officials are now collaborating on a new  project — All Aboard! This initiative, spearheaded by the IMAXI Cooperative, combines scientific research with the practical development of a new participatory tool that aims to make “Nothing about us without us” a reality in global health governance. We believe that by advancing the meaningful participation and accountable representation of the most affected communities within decision-making institutions, fewer people living with life-threatening and life-changing diseases / disabilities will be ‘left behind’ and left out of programmes to improve health and well-being.

Before tools to claim ‘seats at the tables’ of the policy-makers can be forged, we seek a broad-based consensus on what meaningful participation actually means. Below are a few elements – we like to know what else can be added to the mix.

• Meaningful participation is based on the principle that those who are affected by a decision have a right to be involved in the decision-making process.

• Meaningful participation includes the promise that the public’s contribution will influence the decision.

• Meaningful participation promotes sustainable decisions by recognising and communicating the needs and interests of all participants.

• Meaningful participation contributes broad, long-term stake-holding to policy development when supported in a sustainable manner.

• Meaningful participation seeks out and facilitates the involvement of those potentially affected by or interested in a decision.

• Meaningful participation seeks input from participants in designing how they participate.

• Meaningful participation provides participants with the information they need to participate in a meaningful way.

• Meaningful participation communicates to participants how their input affected the decision.

• Meaningful participation helps to assure that ‘no one will be left behind’ in the sustainable development agenda.

• Meaningful participation enables people to realise their rights to participate in, and access information relating to, the decision-making processes which affect their lives.

Please send us any further ideas or suggestions. Everyone’s welcome to “Write Your Rights” to a seat at the table.
Contact us.

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“Women are mobilizing…”

Women are mobilizingWomen are mobilizing…   Women from across Civil Society and across the globe are mobilizing to thank UNAIDS for their investments in women and girls and to let them know that there is still so much to be done. We urgently need to have global leadership, partnership and accountability that includes women from grassroots upwards to shape, guide and influence the policies and interventions that impact our lives. We can not go backwards and must have systems in place that protect our gains and continue to move us forward.

Please find the sign-on letter below to UNAIDS.
Anyone who wishes to sign on can email kristenldegraaf <at> gmail.com  with your name, country and organization (if applicable) by 24 Feb. Please share widely. Thank you everyone!
Brightest Wishes,  Ebony Johnson
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Women have spoken: #WhatWomenWant is renewed leadership, investment, and partnership

We are at an historic moment rich with opportunity, yet we are challenged with ambiguity, contradiction, and uncertainty that threaten to reverse the gains made in terms of our rights, our health, and our equality.  The connections we make, the work we undertake, the experiences we bring, the vision we shape, and the future we build together is more critical than ever to achieve a world where women in all our diversity and across our lifecycle lead and realize our dreams.   Achieving our rights and health, and living with dignity, depends on achieving justice, safety, and equality for all.

The most effective solutions for women and girls must include us, our voices, our visions, and our guidance.

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